Hemophilia A Inhibitor Resources
Inhibitor development is the most severe treatment challenge that can affect anyone with hemophilia A at any time.1-3 Utilize the resources on this page to learn how the results from the SIPPET study may affect you.
HEMATOLOGIST VIDEO STORIES
Learn more about inhibitors and SIPPET from leading hematologists.
Dr. Flora Peyvandi
Dr. Steve Austin
DOCTOR DISCUSSION GUIDE
Start the conversation with your hematologist about your risk of developing an inhibitor. Download the Doctor Discussion Guide, which contains helpful information and questions to ask your doctor.
You aren't alone. Currently, there are an estimated 20,000 people living with hemophilia in the United States.4 Find more information and support from established and well-known advocates within the hemophilia community.
Hemophilia Federation of America
Patient-focused group for those with hemophilia, von Willebrand disease, and other bleeding disorders.
National Hemophilia Foundation
Dedicated to finding better treatments and cures for inheritable bleeding disorders.
World Federation of Hemophilia
A global network of healthcare providers, national hemophilia associations, people with hemophilia, and their families.
LA Kelley Communications, Inc
Worldwide provider of innovative books and newsletters on bleeding disorders.
Hope for Hemophilia
Established to help give hope, strength, and resources to people living with hemophilia and their families.
Comprehensive Health Education Services (CHES)
Founded to provide patients with chronic medical conditions the knowledge and support to help them claim their independence.
Sign up to receive access to the full SIPPET study, as well as updates about hemophilia, inhibitors, and the latest clinical data.
- Srivastava A, Brewer AK, Mauser-Bunschonten EP, et al; Treatment Guidelines Working Group. Guidelines for the Management of Hemophilia. 2nd Ed. Montreal, Canada: World Federation of Hemophilia; 2012.
- Hay CRM, Palmer B, Chalmers E, et al. Incidence of factor VIII inhibitors throughout life in severe hemophilia A in the United Kingdom. Blood. 2011;117(23):6367-6370.
- Soucie JM, Miller CH, Kelly FM, et al. A study of prospective surveillance for inhibitors among persons with hemophilia in the United States. Haemophilia. 2014;20(2):230-237.
- Hemophilia Federation of America. What is hemophilia? Hemophilia Federation of America website. http://hemophiliafed.org/bleeding-disorders/hemophilia/. Accessed April 1, 2022.